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Harry's Story: A big show of strength

“The team at Christchurch Hospital are amazing, and we want them to have the best facilities to match their expertise and care.”

Having a child in hospital can be a parent’s worst nightmare. For Charlotte, it's something she's learned to accept: her son Harry has spent time in and out of treatment since he was five weeks old. Here’s his story. 

"When our baby boy, Harry, was born, I knew instinctively something wasn’t right: he didn’t sleep, he suffered bad reflux and he wouldn’t gain weight. Five weeks after he was born, our midwife broke the news that Harry had tested positive for Cystic Fibrosis. 
 
From then on, we were constantly in and out of hospital, including a full two weeks when Harry was just four months old. Our biggest struggle wasn’t our lack of sleep or the endless hours in the hospital environment – it was the trauma of seeing our baby boy in a hospital bed with tubes going in and out of him.
 
Harry is now eight years old, and he’s thriving. He plays soccer and cricket, has loads of friends, and his sister Phoebe and brother Tom are a wonderful support to him. Most people wouldn’t even know he was unwell. We now go to hospital about once a year – it’s an improvement from how it used to be, but it’s still a difficult time that leaves us emotionally and physically drained.
 
The team at Christchurch Hospital are amazing, and we want them to have the best facilities to match their expertise and care. Our wish in the future is to have a decent bed to sleep in next to Harry’s, and spaces like a playground and games room to provide an escape from the difficulties of treatment. These things would make a world of difference for all families and children in the hospital, and that’s why we’re proud to support the Māia Health Foundation."

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